A Pain Survivor Community
I just became a member so HI everyone
I'm so happy I found all of you. I was diagnosed with CRPS in 2004 following an injury in 2003. I crushed my foot at work and this journey began. I'm honored to be able to share my story with you. I have felt so alone and scared during these last seven years, so thank you all for sharing your stories and being so brave. I look forward to hearing from you.
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Replies to This Discussion
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Permalink Reply by Julian Phillips on -
Welcome to hoh i understand how you feel about being alone. I was first diagnosed back in england in 1982 and truly the first real support group i found comfortable with was this a few other Nicole suggested. She is one amazing person and meeting her literally turned my life around. i hope you will find this site as much help as I have.
Julian
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Permalink Reply by vicki l galvin on -
Hi
It's so good hearing from you. How in the world did you get the opportunity to meet Nicole????
I told my husband how much I would love to meet her, she sounds so amazing. Anyway, how are things with you? I'm still trying to find my way around this sight, so I was so happy to have you as a hoh friend. Finding this sight and group of people is something I've been looking for. Well, I've got to get back to my homework so bye for now.
Vicki
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Permalink Reply by Stacie Cavallaro on -
Hi Vicki,
Welcome to HoH!
I was diagnosed with CRPS in 2006 following a work-related accident, too! I am still dealing with worker's comp and will be for the rest of my life! How has it been for you dealing with the system? It has been one fight after another ... all I have asked for was just what I need to be able to live a somewhat normal (whatever that is!) life. The CRPS has effected my entire body, and it continues to worsen. I walk with the aid of a walker, and I am awaiting the arrival of a new wheelchair. Do you have an attorney working for you? I know that I could not have lasted without my attorney - he has been wonderful. Anyway, prior to finding HoH and US Pain Foundation, I felt so alone and scared, too. I think that is normal for everyone who suffers with chronic pain. We are so isolated from everyone. I have a terrific pain management doctor and he has tried everything possible to help me. Unfortunately, nothing has worked. So now I take four different pain meds around-the-clock. My life has been turned upside-down. But I have my husband by my side all of the way. He has been wonderful through all of this, and I do not know what I would do without him. Are you married? Any children? I have one son - he is 28 years old. Unfortunately I have not spoken with him for three years. November 10, 2008 was the last time I saw him. He told me that he cannot take seeing me "like this" . I feel he is being very selfish and immature, and he has broken my heart. But there is nothing I can do about it. I have told him that I am here whenever he is ready. I have learned through this group that it is very common for close family members to do what my son has done. I have also lost many friends due to my condition. Again, they are selfish and they really weren't friends at all. I have several close friends and I love them dearly. I know I can count on them, and I also know that they will not turn their backs on me. Overall, since joining this group, I have become a stronger woman. I am still learning how to deal with my new life, and it is a difficult journey. But I am okay and have accepted what has happened to me. I may not like it very much, but then again, God doesn't give us any more than we can handle, right?
I wish you all the best, and I hope to hear from you again.
Stacie
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