Tri-State Area Pain Group

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Comment by Cyndi McKnight on July 7, 2011 at 12:53pm

Hello group! Just wanted to keep everyone updated on how my summer has been going.  Quite fankly, it has been a mixed bag ranging from very good and exciting stuff happenning to very scary and disturbing occurances.  I have met it all (well, most) of it with at least a decent attitude which helps alot.  So does a good sense of humor.  my physical health has not been good the last two weeks in particular with 2 hospital admissions in those 2 weeks.  I just got out again on Tues.  I am starting to feel better and can only hope and pray that my health continues to improve and that I am willing and able to do ALL that is necessary to make that happen.  On the up side of things....I have done a couple of interesting artistic projects for myself which involve painting and photography.  The results I have been pleased with and have received good feedback from others on both projects.  I am so happy and blessed to have my creative outlets and talent as it really does not only help me to process each day's events, but is very calming and soothing as well.  My apartment is starting to look like a small art gallery!

 

All in all, not a bad summer so far....bad moments, but with faith and support I am now confident I can handle almost anything.  Thanks for listening and hope to hear from you soon!

Cyndi

Comment by Stacie Cavallaro on June 22, 2011 at 6:52am

Hi Cyndi,

Happy Summer! I am so glad to hear that you are feeling better and that the new meds are helping with your pain. Even the tone of your note sounds wonderful!! And I think photography is a great outlet for you. It is amazing what you can see through the lens of a camera as compared to just looking at it. Please post some of your photos when you get the chance - I would love to see them! This one of the bridge is beautiful.

There is nothing really new on this end. Oh, with the exception of my in-home assistance and my nurse. Workers comp finally approved the aid and she comes three times per week. She is a really nice girl ... a pre-med student. I enjoy having her come and she is such a huge help to me. And my nurse is really nice, too. She comes one time per week just to take my bitals and make sure I am doing okay. Actually, she should be here at 10:00 this morning.

I saw my doctor last week and he increased my vicodin. But unfortunately it is making me sick so I have been trying to reach him so that I can get a script for the othe one. And he also gave me a new med for the severe sweating. I only had to take it twice so far and it does help. Thesweating is a symptom of my comdition and it was really get out of hand. During the ight I would have to change my bed clothes 2 or 3 times. I would go from hot and then to being freezing cold.

Well, I have to get ready for my nurse so I will end now. Again, I am so glad to hear you are doing better!!!!  Write when you can.

Stacie

Comment by Cyndi McKnight on June 21, 2011 at 4:38am

sorry I have not checked in for some time.  Part of it has been illness and part getting involved in some creative endeavors.  My doctors are changing my meds around trying to find a combination which will optimize a level of pain control. the meds i am on right now are bringing me a fair degree of relief from pain.  i am hopeful that i will continue to receive a decent level of relief from pain. 

 

I have also been trying to do some creative projects for myself some of which involve painting and photography.  all in all i have been feeling well physically, spiritually and emotionally.  i have moments which are more challenging that others.  i try to remind myself at those times that as long as i wake up and eventually put my feet on the floor it is a good day.

 

hope all is well with you!

Cyndi

Comment by Marie G. Maroney on May 18, 2011 at 7:35am

Cyndi, I wish there was some miracle tip to give you, I was where you are at one point in my life, i used to ride a bicycle up to 50 miles in a day, go camping, hiking, etc, it is depressing, but, it does get better. Keep moving despite the pain, just know your limits for now. You can slowly increase the amount of activity on a weekly or monthly level. Please keep in touch with us, sorry I can't be more helpful. Marie

Comment by Stacie Cavallaro on May 16, 2011 at 7:58am

Hi Cyndi,

I am so sorry that you are having such a terrible time of it. I wish I had some secrets or tips which I could share with you, but I just don't have that magical answer. We are all in such a difficult position dealing with our pain, and it is a constant battle to keep moving forward. I am glad you are receiving professional help with your depression and I truely wish there was something I could do or say to help you. Personally, I have good and bad days. There are days when I just don't want to move, but I force myself to get up, take a shower, and get dressed. Sometimes it helps, other times it doesn't. I feel so terrible for you right now. I wish I could just give you a big hug and make it all better for you. We have so much to deal with and sometimes I think it is just far too difficult. With each new day, please try to find one thing that makes you smile. Maybe something cute which your cat does, or even a funny program on tv. Anything at all that brings a smile to your face. Now that everything is blooming outside, just looking at the beautiful flowers makes me happy.

Cyndi, please hang in there as best you can. One day at a time is all anyone can ask. Try not to worry about what the future has in store for you ... everything has a way of working out. You are young, and you will get through this difficult period.

Please keep in touch.

Stacie

Comment by Cyndi McKnight on May 15, 2011 at 5:55pm

hello ladies!  I know it has been awhile since i have posted anything.  Part of that was due to my broken wrist.  another part has been more to do with an intense battle with depression i have been dealing with.  i was hospitalized for a week a little while back because the depression was so severe.  i felt better when i first was discharged than i do now.  i seem to be sinking right back into a pit of despair.  i am a young 48 and just cannot seem to envision a purposeful life for myself dealing with all of my pain issues, other health issues, and mental illness as well.  i try to get and stay more positive but it is a constant battle i do not aways have the energy to fight.  if either of you have some tips on how to cope, please let me know?!

 

thanks and God Bless!

Cyndi

Comment by Marie G. Maroney on March 22, 2011 at 8:28am

  So glad you are looking at the positive now Cyndi. You will see what a change being positive about things will do in your life. Please continue to do so. Faith is a wonderful thing also, and that too should bring positive results for you. Do not hesitate though to tell us when and if you get "down" again. We must all stick together in this., Happy for you, Marie

Comment by Stacie Cavallaro on March 21, 2011 at 4:50pm

Hi Cyndi,

Wow, you sound wonderful!!!  I am so glad to hear that you are doing much better. I know it is difficult, but sometimes it helps to look on the bright side. The world doesn't seem like such an awful place when we do. I can't tell you how pleased I am to hear from you!!!  Your entire being is coming through the computer loud and clear --- and it is terrific!!! Keep the good vibes coming!!!  LOL!!!

Cyndi, we are all here to help each other through the good times and the not-so-good. We all have ups and downs and it is so comforting to know that you are all here for me when I am down. 

You didn't mention how it is going with your wrist, and with the visiting nurse coming more frequently. I hope that is all working out better for you.

Wishing you continued joy, and I hope you have a comfortable evening.

Stacie

Comment by Cyndi McKnight on March 21, 2011 at 1:24pm

Hello ldies!  I can actually say that I believe my outlook is becoming much more positive than it has been for quite some time.  I have made a concious decision to look at the things I can do now instead of thinking about my limitations.  I soooo appreciate you both being patient with me as I attempt to make the most out of the life God has given to me.  My faith is becoming stronger and stronger each day!  I hope this post finds us all at peace with ourselves and our circumstances.

Cyndi

Comment by Stacie Cavallaro on March 17, 2011 at 6:05am

Cyndi,

I am so sorry to hear that you have fallen once again, and re-injured your wrist. It sounds so easy to say hang in there and things will get better, but it is true. Somehow we learn to adjust to our new lives and in actuality, we really have no choice. I am glad that your nurse is coming more frequently, and that you are having physical therapy, as well. I really hope and pray that the therapy helps you to re-gain some strength. I agree with Marie about the wheelchair - has anyone mentioned this to you? I know you may not want one, but if it helps you to be safe and secure, then I think it sounds like a wonderful idea. At the present time, I am waiting for worker's comp to approve one for me, as my doctor has recommended it. I don't want to be in a wheelchair, but if it helps me then I am all for it. And it may not have to be a permanent thing. As you get stronger with therapy, you may not need it in the future. But for now, the important thing is for you to be safe.

Cyndi, please be careful and try not to get too depressed. I know it is hard but you can do it. We are all on a difficult journey and staying positive is a big part of it.

Wishing you a comfortable day.

Stacie

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