"Good for you and glad after such a long time things have worked out for you. Enjoy your mini-vacation and then more importantly your beautiful new bathroom and ramp.
Soft hugs
Julian"
A Pain Survivor Community
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Julian Phillips
- Male
- Coopersburg, PA
- United States
- Blog Posts (1)
- Discussions (36)
- Events
- Groups (2)
- Photos (12)
- Photo Albums
Julian Phillips's Discussions
Any help or suggestions to my problem would be greatly appreciated
6 Replies
Forgive me for sounding somewhat selfish but the honest truth is I have no idea where else to go. I've been on unemployment while my Social Security disability application is being appealed with the…Continue
Started this discussion. Last reply by Stacie Cavallaro Mar 9.
sleep issues
3 Replies
I am in real need of your help, I have been taking the same medications now for approximately a year and suddenly the last few monthsI have been experiencing ridiculous sleep patterns. Well actually…Continue
Started this discussion. Last reply by Stacie Cavallaro Oct 28, 2011.
Me on the morning call
1 Reply
http://www.mcall.com/health/mc-health-chronic-pain-20110523,0,3614826.story
Started this discussion. Last reply by Nicole Hemmenway May 26, 2011.
Help with my mba class discussion two for this week
Research an article from a scholarly journal or popular press that provides an example of how a specific type of medical technology is evaluated. The evaluation method you select can be from…Continue
Started Jan 13, 2011
Julian Phillips's Page
Latest Activity
Stacie Cavallaro replied to Julian Phillips's discussion Any help or suggestions to my problem would be greatly appreciated"Hi Julian,
After reading your post, I have to write and say that it has brought me to tears! It is unbelievable that in this day and age, people are forced to suffer if they cannot afford their medications. First and foremost, you are in no way…"
DeNise Watkins Hamilton replied to Julian Phillips's discussion Any help or suggestions to my problem would be greatly appreciated"P.S. Medicaid pays for meds with a co-pay from $1 to $5.
DeNise"
DeNise Watkins Hamilton replied to Julian Phillips's discussion Any help or suggestions to my problem would be greatly appreciated"Julian,
Boy, do we have the same story!!!! I lost my job in August 2011 BECAUSE I had the balls to ask for accommodations. I, too, have applied for Social Security and not gotten an answer yet. I was on SSD in the early 90's but its no…"
vicki l galvin replied to Julian Phillips's discussion Any help or suggestions to my problem would be greatly appreciated"Julian
I get so excited when I see that you have replied. It sounds like you are going to have to make some noise if no one will help you. It is not acceptable for you to have to go off your meds because you can't afford them. There is…"
Julian Phillips replied to Julian Phillips's discussion Any help or suggestions to my problem would be greatly appreciated"Dear Vicki,
Thank you very much for what you say, and I truly appreciate you letting me know that you didn't think I was being selfish. Over the almost 30 years that I have had RSD in my right arm I have tried so many different means of trying…"
vicki l galvin replied to Julian Phillips's discussion Any help or suggestions to my problem would be greatly appreciated"Dear Julian,
Let me start by saying, you are not being selfish, you are desperate. Your letter really breaks my heart because I know the pain you're dealing with. I've had RSD for over seven years in my foot and it is HELL. I…"
Julian Phillips posted a discussionAny help or suggestions to my problem would be greatly appreciated
Forgive me for sounding somewhat selfish but the honest truth is I have no idea where else to go. I've been on unemployment while my Social Security disability application is being appealed with the help of an attorney. However, the unemployment has now come to an end and we still have not had a final adjudication regarding my Social Security benefits although, the attorney thinks we are close.In the meantime I somehow have to be able to afford the medications that I'm on for pain, because I…See More
Julian Phillips left a comment for Nicole Hemmenway"I guess if I had looked into the comments here what with losing the house and moving into my daughter's basement. Plus the RSD flaring and the meds throwing any sleep cycle I may have had out the window.
Any more important congratulations"
Julian Phillips left a comment for Nicole Hemmenway"congratulations on having the baby did you have a boy or girl and when was the birthday? God Bless you and your family. "
DeNise Watkins Hamilton replied to Julian Phillips's discussion learning to add pictures here of my buddies in the group Friends of Furry Creatures :)"Glad to see you all count on your animals. i have 3 dogs - an all white border collie mix, a schnoodle westie mix and a toy poodle. I also 5 cats. Regular zoo here."
Julls Bace left a comment for Julian Phillips"Thank you Philip for friending me. I was in an auto accident 4 months ago but it feels like a lifetime. I am in round the clock pain and not able to work at this point. my doctor keeps trying different medication to get the pain under control. I…"
Julian Phillips replied to vicki l galvin's discussion I just became a member so HI everyone"Welcome to hoh i understand how you feel about being alone. I was first diagnosed back in england in 1982 and truly the first real support group i found comfortable with was this a few other Nicole suggested. She is one amazing person and meeting…"
Julian Phillips posted a status"Well here we are on vacation and the love of my life, Geraldine, is in hospital hopefully jut over night. Now I need to try and get to sleep"
Stacie Cavallaro replied to Julian Phillips's discussion sleep issues"Hi Julian,
I am so sorry you are having issues with sleeping. I don't know why this is happening, but maybe you need to speak with your doctor. It may be time for him to change your meds. To me, it seems quite dangerous for you to be in such a…"
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Julian Phillips's Blog
alternative medications
This will have to be short as i have lost my voice. The family have given all the jokes about me being silenced, and as a result i cannot use my dictating software since my right hand (which is primary rsd site) and the left elbow are both running off the pain charts. I wanted to mention a point Nicole made in a recent blog to a producut mixture that assisted her. If anyone is interested, I am a distributor of both Limu and Nikken products.
I am truly thankful to Nicole for…
ContinuePosted on January 24, 2011 at 4:30pm — 1 Comment
Comment Wall (21 comments)
- At 7:30am on January 22, 2012, Julls Bace said…
- Thank you Philip for friending me. I was in an auto accident 4 months ago but it feels like a lifetime. I am in round the clock pain and not able to work at this point. my doctor keeps trying different medication to get the pain under control. I feel for all of you have lived with chronic pain for such a long time. I have just gotten a small glimpse of what it's like. I bless you on your journey and may you find comfort in friendship. Juls
- At 6:05pm on August 30, 2011,
Susan Massengill said… - Hi......Clayton is east of Raleigh.....we had some damage to our back deck and a friend had some damage to her beach place but noone we knew were injured ....thankfully! Its been a tough day....PT was difficult...desensitiozation program is tough!! Still new to this and trying to figure out what type of dr to see and what is best....meds, shots etc,,,,,losing my mind with this pain......hope you have a good night and get a good night s rest!!
- At 9:00pm on August 29, 2011, DeNise Watkins Hamilton said…
Julian,
Hello! We met at the event on April 23rd @ LV hospital. I can't find your business card but so much wanted to contact you. But you found me. I've lived with back pain and severe spinal degeneration for about 25 years when it started with a disc herniation. Working means so much to me. Having lost it because of my disability makes me feel totally useless and a failure. I am glad you welcomed me. I am in West Bethlehem just about a mile from the Allentown line.
- At 1:02pm on June 13, 2011, Nancy Cotterman said…
- Jillian,
Nice to meat you. I have had "full body" RSD for 15 years. My orininal injury was multiple fractures to the right metatarsals. I was a RN prior to my injury. I look forward to chatting with you.
Nancy
- At 1:09am on May 4, 2011,
Cathy Porter said… Thank you Julian for your welcome. I am happy to be here and hope I will meet lots of new friends and share myself with others. Looking forward to getting to know you
cathy
- At 6:32pm on April 17, 2011,
Dr Patty Verdugo, PsyD said… 
- At 1:19pm on February 21, 2011, christine aggott greenwood said…
- hi!!! thank you sooo much for the welcome!!!
- At 9:13am on February 17, 2011,
Cathy McCarthy said… Dear Julian
Wow! You guys are on the ball! Thanks for friending me, I will add some details about me a little later as I am off to work...yes I still work PT, part of my coping mechanism.
- At 3:25am on February 8, 2011, Anne Hardwick said…
Hi Julian.
Thanks for the message, wow 29 years is a long time.I struggled with 6 1/2 years. I cannot be courageous at the moment with this monster and still get quite cross with my ankle and foot and try to distance myself from this problem. I know this is the wrong thing to do, but I am having some help to deal with all of these emotions I have welling up inside me. I want to cry but cannot. I've considered suicide and had to have my anti deprssants increased, so really not in a very good place at the moment.
- At 4:30pm on February 6, 2011, Emily Skrypek said…
- Thanks for the welcome Julian. I am so glad I found this group. I have suffered with chronic pain since 2005 after having brain surgery that had unpredicted side effects. have a good night - Emily
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