A Pain Survivor Community
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Sometimes the hardest position is to be a bystander watching the person you care for struggle. While you know there is nothing you can do to ease the heartache, you still wish you had the right words…Continue
Started Nov 3, 2011
After receiving an email this afternoon from a friend telling me about her mini-vacation this past weekend, I began thinking that we all need a mini-getaway. Each of us needs an escape from the daily…Continue
Started Oct 25, 2011
Last night I attended a prenatal yoga class. This was the first time I had done yoga since April, and I was a bit nervous. As some of you may remember, I became interested in this practice earlier this year. It was part of my New Year’s Resolution of making time for me and finding balance in my life.
Entering the studio was intimidating for me. I wanted to be a rock-star. I wanted to be able to do every pose my peers were doing, and leave the class feeling relaxed and…
ContinuePosted on October 19, 2011 at 4:43pm
This morning I went to the gym, a place I have not frequented much since becoming pregnant. I decided to use the treadmill since learning I can participate in light forms of exercise such as walking. Although there was a part of me that felt guilty that I did not walk outdoors with the dogs, I knew today was about me. I just wanted to feel a bit of normalcy return to my every day life; I hope to take Cooper and Lucy on a much-needed outing this weekend.
I charged my iPod…
ContinuePosted on September 8, 2011 at 8:35am
Yesterday was the perfect day. I woke early, drove to the city to pick up a dear friend and then we met my mom at the Sonoma Mission Inn for a spa day. Being able to relax and soak in the mineral waters was exactly what I needed. As the aches in my low back dissipated as well as the inflammation in my legs so did my worries and frustrations.
A shift occurred inside. The hot mineral springs not only healed my body, but more importantly, the waters healed my spirit. I started…
ContinuePosted on September 2, 2011 at 5:22pm
I was just curious if any of you have benefited from Epsom Salt baths? An HoH member sent me a message about how his friend has found temporary RSD/CRPS pain relief from these warm baths. Have you tried it? What are your thoughts?
I know my doctor recommended Epsom Salt to me years ago too. Just interested in your experiences!
Nicole
Posted on February 16, 2011 at 8:10am — 2 Comments
I guess if I had looked into the comments here what with losing the house and moving into my daughter's basement. Plus the RSD flaring and the meds throwing any sleep cycle I may have had out the window.
Any more important congratulations
congratulations on having the baby did you have a boy or girl and when was the birthday? God Bless you and your family.
Hi Nicole,
It's so nice to hear from you. Thank you for your kind words. I know you have a great support system with your family and friends, but I have to say you truly are one of the most inspiring people I know. I sometimes think it would be easier if I could just go away somewhere, go through whatever my withdrawal might be, then come back home to my family and friends. I'm sure this isn't rational thinking, but this whole journey I'm on doesn't seem rational. I'm scared at the thought of more pain, but the thought of taking these meds for a lifetime is even more scary. My plan is to wean off of the Fentanyl patches first, and my doctor suggested I start when the weather warms up since the cold weather seems to be when I hurt the most.
I was wondering if there are any retreats or get togethers that any of the HOH family get together for. The thought of meeting people "like me" would be so exciting. One of the hardest things for me is feeling alone on my really bad days.
Well, I'm finishing up my last semester of college, so I better get to my homework. Hugs to you and your family.
Vicki
Thank you for the friend request, I look forward to being a part of the community here!
I need your help. My best friend Christine Sanfrey Stevenson a 30 year RSD/CRPS sufferer is writing a book about this horrible disease and has little or no resources to make it happen with publishers. Not asking for money, just hoping you might know how to help her or someone who can.
ps I just purchased your book for her and hope you'll autograph it for her. Thanks,
James Sewell
Hi Nicole,
I am Stacy Mannis' aunt and she thinks very highly of you. I have just ordered your book and want to get to know you.
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