Puerto Rico Challenge RSD/CRPS
This is a Link to unite all supporting groups to be solidarity to share and collaborate. To continue advocacy official American Pain Foundation Leadership Network, Puerto Rico since Sept. 1rst, 2010See More
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Rhia posted a blog postFor those of you with Lupus - or caretakers, spouses, family and advocates - help with FDA approval of Benlysta
Here is a portion of the newsletter I get from Lupus.org. It has the email address of one of the women at the FDA who will have something to do with Benlysta, the brand new Lupus medication, first ever of its kind,FDA approved by Dec 9th 2010!! Please send her a brief email of yourhopes and feelings about getting this approved. :)Food and Drug Administration to Hold Hearing on BENLYSTA®On November 16, 2010, the Food and Drug Administration (FDA) will hold a hearing to discuss the application to…See More
Rhia replied to Nicole Hemmenway's discussion Let's see how many people respond to this!"First of all Nicole, thanks for asking how we have been doing. Although most of us are asked that question just about everywhere we go, including the DOCTORS office, the majority of those that ask, truly DO NOT really care about how we are. It is…"
Rhia left a comment for koya konan"more from last comment...The pain pump is there in the lower part of the abdomen, and even as thin as it is, it could possibly "show" depending on your body type. It also has to be filled periodically, thus that means going into the office…"
Rhia replied to Nicole Hemmenway's discussion Finding Our Way"By the way, I wanted to also thank everyone that works so diligently on the INvisible Project! Hats off to the tremendous efforts and concern all of you have.... Rhia"
Rhia replied to Nicole Hemmenway's discussion Finding Our Way"Thank you so much Nicole for your words of encouragement, faith, hope, and the journey through pain that millions of us continue to endure daily. Like yourself, September Pain Awareness Month is more than half over, and that just does not seem like…"
Rhia's Blog
For those of you with Lupus - or caretakers, spouses, family and advocates - help with FDA approval of Benlysta
Here is a portion of the newsletter I get from Lupus.org. It has the email address of one of the women at the FDA who will have something to do
with Benlysta, the brand new Lupus medication, first ever of its kind,
FDA approved by Dec 9th 2010!! Please send her a brief email of your
hopes and feelings about getting this approved. :)
Food and Drug Administration…
Continue Posted on October 18, 2010 at 8:12am
Comment Wall (3 comments)
- At 8:18am on August 24, 2010,
Nicole Hemmenway said… - I couldn't have said it any better..."With all of our voices together, we can make a difference." Thank you for being here and I look forward to learning more about your remarkable story. Hugs, Nicole
- At 2:51pm on August 23, 2010, Nicole Hemmenway said…
- Hi Rhia, how are you? Just wanted to let you know that I am thinking of you and looking forward to getting to know you better. I hope you find Heroes of Healing to be a helpful resource to you...remember that we are all here to help support one another through the struggles and triumphs of pain. Hugs, Nicole
- At 4:57am on August 23, 2010,
paul gileno said… - Hello Rhia, So happy you joined us here on Heroes. We hope you know we are here for you along your healing journey and want you to know we understand. Thank you for joinging!
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