"Congratulations Nicole on one more accomplishment. Thanks for forming this site to bring us closer and find support in each other.
Mother of a child suffering from RSD
Silvia"
A Pain Survivor Community
Silvia's Page
Latest Activity
Silvia replied to pmdd's discussion For those new to RSD...it is possible to have a life, a happy one...maybe not now, but it is possible to get the pain under control. How many have the pain under control?"Hi, I was reading your comments back in November. Can you please tell me if Dr Dellon's treatment helped? Your last comment was very positive. I am looking for something for my 23 yr old son who they say has RSD on his left…"
Silvia left a comment for Stacie Cavallaro"Hi Stacie. I hope you are feeling better today and have no pain. It's good that you and your husband go out to clubs, even if it is just for a little while. You need to get out to distract yourself and do things you…"
Stacie Cavallaro left a comment for Silvia"Hi Silvia,
I feel very badly for you and your son. I certainly hope he does not need another surgery as that may actually make the CRPS even worse. You are so right - this is an awful disease and there is no cure for it. We will have this forever in…"
Silvia commented on Relentless Agony, aka "Joe"'s group Wisconsin & Surrounding States"We live in Chicago Illinois. My son was just diagnosed with possible RSD?CRPS the beginning of this year. He has student insurance and it is an HMO so he is limited on who he can see. He had surgery at UIC and can only…"
Silvia joined Relentless Agony, aka "Joe"'s group
Wisconsin & Surrounding States
Like other location-based groups, I'd love to know who lives in or around Wisconsin. Residents of Minnesota, Michigan, Iowa, and Illinois are invited!
Silvia left a comment for Stacie Cavallaro"Hi Stacie. Thanks for your kind thoughts and concern. I am so sorry to hear you have this. I hate this disease. I wish I can wave a magic wand and take this away from each and everyone of you. I pray for you…"
Silvia replied to Nicole Hemmenway's discussion I believe."Wow, this is beautiful Nicole. By the way, you have an awesome husband. I wish everyone's spouse/partner is as comforting and understanding. Thanks for sharing
Sending you hugs
Silvia"
Stacie Cavallaro left a comment for Silvia"Hi Sylvia,
I notice that you joined HoH about a month ago and I just want to welcome you to this wonderful site. I think you will find that every member is so caring and compassionate.
I am sorry to hear that your son may have RSD (aka CRPS).…"
Nicole Hemmenway left a comment for Silvia"Hi Silvia! I am so sorry it took me a day to connect, but I wanted to thank you for joining HoH. We are so glad you are here and I cannot wait to get to know you better.
We are all here to support, inspire and encourage each other through the…"
Comment Wall (3 comments)
- At 12:01pm on March 12, 2011, Stacie Cavallaro said…
Hi Silvia,
I feel very badly for you and your son. I certainly hope he does not need another surgery as that may actually make the CRPS even worse. You are so right - this is an awful disease and there is no cure for it. We will have this forever in our systems. For me, my husband and I enjoy going to clubs to listen to bands play but the vibration of the music hurts too badly. I can only stay for a short while and then I have to leave. Being so young, does your son have support from his friends? Some people just cannot handle being with someone with a disability. I know because I have lost many friends due to this. It is a shame as we are still the same person - just with a problem, that is all. But someone who cannot handle this is really not a friend anyway. You sound like a very good mother - but do not forget that you need to talk also - as his caregiver. My husband is caring and supportive, but I feel so bad that I have ruined his life. He has given up so much for me. He gets very angry when I talk like that, though.
Well, I wish the best for you and your son. And please keep me posted on his progress. I really do care.
Stacie
- At 4:30pm on March 6, 2011, Stacie Cavallaro said…
Hi Sylvia,
I notice that you joined HoH about a month ago and I just want to welcome you to this wonderful site. I think you will find that every member is so caring and compassionate.
I am sorry to hear that your son may have RSD (aka CRPS). I was diagnosed with this disease in 2006 and it has been a battle ever since. This is a very nasty disease, and it has consumed almost my entire body. The pain is horrendous at times and I truely feel so badly for your son, and for you as well. I hope that your son is receiving the proper treatments and that the doctors are able to stop the disease from spreading. And I hope that you as his caregiver are developing your own support system, as it is very important for you to be able to express your feelings, as well.
I wish you and your fmily the very best.
Stacie
- At 7:45am on January 31, 2011, Nicole Hemmenway said…
Hi Silvia! I am so sorry it took me a day to connect, but I wanted to thank you for joining HoH. We are so glad you are here and I cannot wait to get to know you better.
We are all here to support, inspire and encourage each other through the ups and downs of pain. I know through my own journey how important it was for me to connect with others who were also enduring many of the same challenges and experiences. I hope you feel empowered through reading others responses and sharing your own. We all have something to offer each other. Sending love and healing wishes your way...keep holding onto hope!
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