A Pain Survivor Community
7 members
4 members
19 members
Happy Valentine's Day!Today, my husband and I are celebrating our 20th wedding anniversary. I cannot believe that we have been together that long. Just like every other couple, we have had our ups…Continue
Started Feb 14
The past couple of months have not been very good for me for several reasons. First, I had a nasty fall at the end of August. It has taken quite some time for me to recover from the injuries, much…Continue
Started this discussion. Last reply by Cyndi McKnight Nov 2, 2011.
Hello All!Last night I had an absolutely horrible dream. It all happened so very fast, and I recall each and every detail......I had stopped into a restaurant to pick up a pizza (I love pizza!). The…Continue
Started this discussion. Last reply by Stacie Cavallaro Sep 9, 2011.
Hello Everyone,A few weeks ago, I went and visited with a dear friend of mine. While sitting and chatting, and just enjoying the beautiful afternoon, we wrote the following little poem together. I…Continue
Started this discussion. Last reply by Stacie Cavallaro Jun 27, 2011.
Hello All!
It's been a while since I have been to visit my friends on HoH. I hope everyone is doing okay and enjoying your summer. It's so hard to believe that tomorrow is September 1 and fall will soon be here.
Summer has been okay for me. The humidity is difficult as it agravaates my condition, but I have dealt with it the best I can. My health aide is working out wonderfully for me.…
ContinuePosted on August 31, 2011 at 10:38am — 4 Comments
I seems that being disappointed is becoming a way of life for me. Today Bob and I had plans to spend the afternoon with our family - a nice Sunday afternoon dinner. But today was a bit more special than our regular family get-together, as my niece and her husband had just announced that they are expecting their first baby. They have been married for about two years and have been wanting a baby for some time now. So this is…
ContinuePosted on March 6, 2011 at 9:43am — 2 Comments
Today was such a wonderful day. My dear friend of forty years came to visit and we spent a few hours together just talking and laughing. Sarah and I have been friends for so long and I cannot imagine life without her. She is one of the most caring individuals I have ever known and I truely cherish our friendship. We are different in so many ways and yet we have so much in common. The conversation just flows - it is not…
ContinuePosted on February 24, 2011 at 2:41pm
I was wondering if anyone has had an experience with Ketamine. My doctor has just prescribed the nasal spray for me to use, but only at times when nothing else seems to help with my pain. The doctor told me to be certain that I am either laying down or sitting, as I will get very light-headed and dizzy. I am to spray once in one nostril only, and this should help to calm my symptoms down for a period of 3-4 hours.…
ContinuePosted on February 16, 2011 at 10:52am
Hi Stacie
It's so nice to hear from you. Happy Valentine's Day and Happy Anniversary. It gives me such comfort to hear from my HOH friends. You are such a kind woman and thank you Bob for taking care of Stacie. It does take great strength and courage to be able to keep a marriage going under such stressful circumstances. The guilt is one of the hardest things I've had to work on; I told my husband once that I wouldn't blame him if he left me for someone who could give him the life he deserved. Boy, that went over like a lead balloon. We have a strong faith and belief that there is a reason for this journey we are on.
I read your comment a little bit ago and when you said you might need someone to walk your dog I got all excited and thought "I'll do it". Then I realized that you don't even live in Oreogn! I'm so used to talking to my family and friends here in Salem, Oregon that I forget my HOH are all over the country.
Well, I hope you have a wonderful anniversary and I'll talk to you soon.
Vicki


Hi Stacie. I hope you are feeling better today and have no pain. It's good that you and your husband go out to clubs, even if it is just for a little while. You need to get out to distract yourself and do things you enjoy. That helps you keep your sanity and helps keep your spirits up. It also helps your husband, because I am sure it makes him happy to see you enjoy the bands as you used to before all of this. When you love someone, you want your loved one to forget their pain, even if it is for a short while. It brings joy to my heart when I see my son smiling and laughing. I get happy when my son goes out with his friends/or fiance. I couldn't imagine leaving the house to go enjoy myself when he is at home alone especially when he is in pain. I just couldn't enjoy or keep my mind off of him so why even go out. I understand why your husband get's angry when you say things like you are ruining his life. You are not. He loves you. You are each other's soulmate. When you love someone, you will not have it any other way. I would be heartbroken if I couldn't be with my son while he needs me. See, no one knows what is going to happen to us in the future. No one is immune to tragedy or sickness. I am sure you'd do the same for your husband if it was the other way around. Keep your spirits up. Enjoy the good days with your husband and your family. I am also here whenever you want to vent or just plain talk. My son and his fiance are out with friends today. Yes his friends had also stood by. Well his RSD is mild and thank god he is able to walk even if he is limping at times or with a cane. Take care and good bye for now. I will keep you in my prayers.
Luv, Silvia
Hi Stacie. Thanks for your kind thoughts and concern. I am so sorry to hear you have this. I hate this disease. I wish I can wave a magic wand and take this away from each and everyone of you. I pray for you and other's including my son who have this. I've been reading so much about it, that I had a breakdown. That is why I hadn't come on here for a while. I needed a break to try to shake off my hurt and depression I was feeling. It is hard to smile when you are hurting inside. But, I manage to do it and encourage him when he is hurting. He is getting treatment. He's getting lot's of physical therapy. He has student insurance and it is an HMO, so there aren't many options on who he can see. I am happy to say that he has been able to walk with out crushes now, and is walking a lot better. But at times, he does need a cane. Like today, he was having pain and felt the swelling of his foot. It is funny because the surgery and the injury was on his knee, but it is his foot and ankle that he felt swell up and has been feeling the burning pain. What concerns me now is that he might need another surgery. His knee has been locking and ortho said that most likely means the surgery wasn't succesful and that he might need another one. We are trying to get a second opinion even if it means paying out of pocket. I am so scared at times, because I don't want it to get worse. I will keep you posted on what happens. thanks for listening and commenting. I hope you feel better.
Silvia
Hello Stacie!! So nice to meet you! Love your dog, hiding his face in the snow!! :) How cute! We have a French Bulldog and a 3lb Yorkie that thinks he is 25 lbs and rules the world! ha Have you seen the new reworked facebook page for USPF and INProject??? We cannot wait to get the USPF website up and running. It is up partially, won't be long before we are moving mountains! :)
Nice to meet you! :)
Dee :)
USPF/INP Volunteer Coordinator
sorry i have not been in touch recently, however i have been spending the last few weeks working on my mba class. i take one class a semester as i cannot handle any more of that not knowing when or for how long i will be able to concentrate, due to the pain etc..
i hope you are having low pain days and wish you happy holidays.
soft hugs
julian
hi Stacy I hope you find the site as useful and informative as I have done even after having had RSD for the past 28 years. Being a part of sites such as this I have found to be extremely useful particularly as we will understand to some degree or other work we are each going through on a daily basis. Take care and soft hugs
Hi Stacie! Thanks for joining Heroes of Healing! I hope you find this site to be helpful, as we are all here to support, inspire, help and encourage one another through the struggles and triumphs of pain. Sending you healing wishes and looking forward to getting to know you better--Nicole
© 2012 Created by Nicole Hemmenway.