A Pain Survivor Community
Another Disappointing Day ....
I seems that being disappointed is becoming a way of life for me. Today Bob and I had plans to spend the afternoon with our family - a nice Sunday afternoon dinner. But today was a bit more special than our regular family get-together, as my niece and her husband had just announced that they are expecting their first baby. They have been married for about two years and have been wanting a baby for some time now. So this is so exciting for us all.
Unfortunately, because of the cold rainy weather, Bob and I were unable to attend this family affair. My body does not tolerate bad weather at all. Obviously I am very disappointed as I did not want to miss the gathering. I told Bob to go ahead without me but he would not go - he insisted on staying at home to care for me. I know that Bob was disappointed, as well, because Kelly is his favorite niece. She is so special to both of us. Of course, everyone understood why we could not be with them. But it is still very upsetting and disappointing - not being able to participate in this special time.
Thank you for listening once again.
Stacie
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Comment
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Comment by Stacie Cavallaro on March 7, 2011 at 10:22am -
Hi John,
Thank you for your words of encouragement. While I know that no plans are ever carved in stone, it is still very upsetting when something has to be cancelled. This is such a special time in our family and we wanted so badly to be a part of it. Without a doubt, our family fully understands when we have to cancel plans. But you are so correct when you say that some will understand, while other's will not. This past New Year's Eve we had made plans to get together with some friends but because of the inclement weather, we were not able to go. Can you believe that these so-called friends were actually angry that we had to cancel??? We have known the hosts for a few years now and they are fully aware of my condition. But to be angry that we could not be there was way out of line. To say the least, we do not consider them friends any longer - rather, they are now reduced to "acquantance" status! LOL! True friends will never be angry in the event plans have to be cancelled.
And I am so fortunate to have such a wonderful husband ... he has never left me to go out. And it sounds like you are a wonderful husband, as well. I am sorry your wife suffers from this terrible disease. I, too, have CRPS (aka RSD) since 2006 and it is so very hard on our caregivers.I know that Bob feels so helpless when I am having a bad flare-up, as he wants so badly to make it better for me. I am sure you feel the same when your wife is having a bad time. From experience, let me assure you that just being there menas more than words can ever say.
I wish you and your wife many pain-free days, and I look forward to speaking with you again.
Stacie
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Comment by John Rains on March 7, 2011 at 7:25am -
Good morning Stacie,
It is difficult when you and your husband can't make it to these special events due to your pain.. I am sorry to hear this news.. My wife and i have had this same problem over the years.. Most understand, while on the other hand some don't.. I praise Bob for doing what he did and stay with you to help.. Sometimes good caregivers are hard to find.. My wife Carol suffers from RSD and we have learned to carve no plans in stone. Some days things will happen the way we planned, and other days we don't get so lucky.... Chin up and have a nice day.....
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