Heroes of Healing

A Pain Survivor Community

Life is always fulfilling even with pain!!

I like to start this off by saying a simple phrase; we still have fulfilling lives even in the presence of chronic pain. I say this knowing each and everyone of you have a fulfilling life even if you think you don’t.

I remember when I came to the realization that I was unable to go back to doing what I loved which was cooking and catering for a living. It was probably 6 months after my second surgery. I was devastated and lost, I became angry, depressed, I denied it, I grieved and I spiraled down to self loathing and pity for myself. I was convinced I would never have a fulfilling life and my life meant nothing and I was useless to everyone.

It took me a long time to realize this was not true, it really took several years of just about giving up, making excuses, saying the pain was to great to do anything, being so depressed that I would stay in bed saying the pain was to much, I wanted to be felt sorry for and left alone. I wanted people to understand how horrible my pain was and the agony I was going through and that was it.

During this time, I did start to read books, I started taking an interest in art, music, history, writing, and anything else to try and keep myself busy. I played video games, I learned to meditate, I started a journal, took up mensa books, brain games, cards, computer games, puzzles, model building, and anything else I felt would help me live through another day. I didn’t realize what I was doing for another year until I met my therapist.

After meeting my Doctor, we started to work on my major issues which were loosing my identity and feeling unfulfilled and useless in my new life. I felt like I was unneeded, unnecessary, and just in the way now. Little did I know that my life would change with a simple realization! My doctor sat me down and said, Paul go home and write all the things you have done in the week between sessions, no matter what write it down. In the next week, I kept a list of things I did, no matter what, read a book, looked on Facebook, searched internet, wrote in journal, and watched a movie, and so on. Doctor Gargan said to me, looks like you had a busy week, I laughed and said “yeah real busy all I did was lay in bed”. It was the first time Doctor Gargan scolded me and told me to get over myself, she told me stop feeling sorry for myself, she told me two stories.

The stories were of two people who we all know, Stephen Hawkins and Christopher Reeves, she asked me are they losers, do they have unfulfilling lives. “Of course not” I said. We went on to talk that whole session on how these great men lives have changed but the spirit in them has not. It seems I was focusing on what I can not do and ignoring the things I can do. I was so focused on the things I lost that I was completely blind to the things I have found out about myself. I was not looking at the fact that people are drawn to us not for what we do but for who we are, our spirits our inner self. No disease, pain or ailment can take that away, it may get lost or fogged up but it is always there. I needed to learn to connect with my spirit and see what I was missing. I learned so much about myself that I never knew existed before my pain. My pain is my blessing because it helped me find my true self, the spirit I have always been, it also has helped me weed out the people in my life I don’t need and find the ones I want in my life. It has shown me that I need to just be and not worry about proving I am worth something.

I found that life is fulfilling everyday, just being should be fulfilling for all of us. We all can do something and can enjoy it to the fullest, even if that is listening to birds chirp all day, connecting with someone, keeping a journal, trying something different to eat, learning something you thought you would never enjoy, sitting in a different part of the house, finding an inspirational quote and passing it on to others, or just thinking positive thoughts.

Our bodies might be different and have restrictions now but our spirits and inner self does not. We can be a great thinker like Stephen Hawkins, or an inspiration like Christopher Reeves. You life is as fulfilling as you make it. If you choose to focus on the things you can not do and say the pain is to much to do anything then you will never be able to do all the wonderful things you can do and enjoy them. I promise you your life is fulfilling and we all have it in us, we just need a little guidance once in a while. Hoping everyone has a low pain but high spirts day.

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Comment by Stacie Cavallaro on January 23, 2011 at 2:51pm

Hi Paul,

Being relatively new to this site, I am still browsing my way around. I see that you wrote this quite a while ago, but in reading same I just have to let you know that you have written about me (once again!). I want so badly to feel like I have some worth in the life which I have been given. I didn't ask for this life, nor do I want it, but it is the only one that I have. I have so much to learn, but I am beginning to feel as though I can have a fullfilling life, even with this disease. I thank both you and Nicole for your inspirational writings, as you are giving me the hope and desire to push myself emotionally.

Wanting so badly to believe,

Stacie

Comment by Chronic Pain Journal on October 22, 2010 at 7:35am
It is so interesting to read your story. Although there are days when I can't look at myself in the mirror, due to the physical change in my appearnce, there were things I learned too. Here are some skills I have gained
1. built a bath and body products company - created, made, designed all of the products
2. Started a Webdesign company - learned how to do graphic design, blog design etc.
3. Started writing for 2 Blogs - one for pain http://chronicpainjournal.wordpress.com
4. knit
5. sew
6. my children got to have me more than they would have
7. They have learned an empathy for the disabled
8. Learned how to be very self sufficient and responsible.
9. got to see all of their firsts
10. My husband and I have a richer and deeper relationship than we would have
11. I have learned my true strength
12. I have learned about human nature - meaness, abandonment but also deep kindness, generosity and compassion
13. Through my Blog and things like this, I have met (cybermet) some of the most remarkable people.
14. I think I have a medical degree now
15. I am grateful for some very small things, like a day when I can make a bed and not worry about it.

Some days I don't feel so strong, I will wallow in the sadness and loss. I have also learned that is ok. We need to grieve about our lost independance too.

Most of all, I am very relieved that it is not my children or husband who physically suffer. Having a sick child would be so much worse.

I am also grateful to people like you, who share your stories and give inspiration to us all.
Comment by Yazmin Michelle on September 30, 2010 at 1:16pm
Wow Dee! Im proud of you . You are strong even with pain , pain doesnt stop you !! you are there advocacing sharing your story is part of being solidarity with others that need our voices ..
Comment by paul gileno on June 11, 2010 at 4:07pm
Dee, it doesnt matter how long it took, you are there now and that is the past. Thank you so much for sharing that. Your not crazy, your more at peace with it and realize that this is your life and you have pain, but pain does not have you. So happy you shared!!
Comment by Dee Delezene Browers on June 7, 2010 at 6:19pm
HOW TRUE THAT STATEMENT IS!!! Paul, I tell people all the time that even though pain has changed me, it really has made me better. They think I am crazy!~ And, think about the amazing people we have met that otherwise we would not have! I have found who my true friends are. I have learned to say no, of course it took almost 45 yrs to do it, but I am getting lots of practice now!!! haha No more doormat for me! :) Keep moving on!

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